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APRIL 2021 NEWSLETTER

Our mission is to build a better and brighter future for all those impacted by Spina Bifida.

 

SBANT Office Has Moved!

In case you missed it last month, we moved our office!  We are in the same building and have the same suite number, we just moved to a larger space. Thank you to all the volunteers who helped us move and organize the office!  It took a team of people three days to move everything and get most of it organized.  There is still some organizing that needs to happen, so if you love to organize and want to come to the office sometime to help, let us know!  As you can see in our pictures, there are a lot of supplies now.  We appreciate everyone's donations.  Don't forget to contact us if you need assistance with incontinence supplies! Email Robin at rlee@spinabifidant.org

 

YOU DO NOT WANT TO MISS REGISTERING FOR

CampTLC-camp.png2021 QuesEverywhere 

Deadline is Friday, April 23rd

You can’t imagine the 

ADVENTURE / TREASURES / GAMES / PUZZLES / FUN

JOIN US JUNE 12-18

You can REGISTER NOW online ~ Today!

Ever wonder what Virtual Camp is like?  How fun could it be?

HERE’S our latest VIDEO Explaining more about CAMP QuesEverywhere

To Register or get more information check out our website at

 www.camptlc-sbant.com!

We need all our AdventurersSeekersDiscoverersInvestigators, and Questers to registers by April 23rd.

You will receive the BEST Treasure – Camp In a BOX… but if you don’t register you will miss the Adventure.

See you soon at

Julie & Erik

817.371.9907 / 214.529.0316

Camp TLC Directors

directors@camptlc-sbant.com

https://www.camptlc-sbant.com/images/rotator/wishlist.png

 

 

Scholarship Program

DEADLINE APRIL 15TH!!

The SBANT Scholarship Fund is administered by SBANT so that persons with Spina Bifida might achieve their full potential through the pursuit of higher education or technical school training. The Scholarship Fund offers assistance to persons born with Spina Bifida for such necessities as tuition, books, room and board and specialized equipment needs. The Scholarship Fund began in honor of Dr. Hurt and continues to be supported by the Dr. and Mrs. Hurt endowment and generous donations from our community.  The 2021 application is available on the link below.  Applications will be due April 15th.  

 

Easter Egg Hunt

Thank you to RISE Adapted Sports for hosting our Easter Egg Hunt this past Saturday!  It was so wonderful to see our families in person and they were VERY EXCITED to attend an in-person event!  Everyone safely wore their masks and RISE had safety precausions set up.  Attendees enjoyed arts & crafts, playing on the adaptive playground, snacks, visiting with Canine Companions puppies, photos with the Easter Bunny, trying out WCMX and of course, hunting eggs!  From little ones to teens, we had a great turnout and look forward to seeing everyone soon!  To see more of our event pictures, please visit our Facebook page. 

 

Virtual Education Day

for Parents of Children with Spina Bifida

May 15, 2021 11:00-5:30cst

Lifelong Transition:
Making Connections for Healthy Living

 

This event will be presented by specialists at Children's National Hospital Spina Bifida Program, Kennedy Krieger Institute Center for Spina Bifida and Related Conditions, Children's Hospital of Richmond at VCU Spina Bifida Clinic, and the Spina Bifida Association.  This live, virtual educational event will address topics relating to growing up with Spina Bifida across three different age groups.  There will be time for Q&A with the speakers and panelists at the conclusion of each presentation. For more information, visit the registration site on the button link below.

We want our SBANT parents to attend this event!  Scholarships for registration fees will be available.  Contact Robin for more information. 

 

 

Special Needs Gymnastics Coming Soon!

Flawless Gymnastics, located in Keller, is opening a section of the gym for special needs gymnastics.  Once the permits are in place, it will be opened up and special needs classes will be free of charge. Be sure to follow them on Facebook or visit their website. Thank you to one of our moms, Kari Leonard, for letting us know about this great opportunity for our community!  If you know of an activity that would benefit SB kids or adults, please let us know so we can share it with others!

 

SBANT Online Store

 Visit the store today!  If you have any questions or requests, please contact Robin at rlee@spinabifidant.org.  Happy shopping!

 

RESEARCH OPPORTUNITY FOR THE CAUSES OF SPINA BIFIDA

The Gleeson Lab at UC San Diego is enrolling individuals of all ages with Spina Bifida and both of their biological parents in a neurogenetic study. We are enrolling people who:
-Have a diagnosis of myelomeningocele (open neural tube defect)
-Underwent surgery shortly after birth OR in utero to close the lesion
-Had a VP shunt placed OR a history of hydrocephalus
-Are available and willing to participate (may be at separate addresses)
This study involves answering a few questions about your medical history, and providing saliva samples by mail. From the saliva samples, we will collect DNA and compare DNA sequences within your family. This study can be completed at no cost to you, and your information will be kept completely private.
If you are interested in participating, please use this secure online form to initiate enrollment: http://goo.gl/forms/ipwG5B6RxNFeAshE3
For more information, visit the study web page or connect with us at contact@gleesonlab.org or (858) 246-0547.
 
 
 
 

2021 Virtual Adapted Fitness Club​
Whether you're looking to connect with friends from across the country or are looking to kick off the new year with a new fitness routine, this program has something for everyone. Join us the third Saturday of each month for a rotating adapted fitness session, from chair yoga to adapted Zumba, this program is sure to offer some of your favorite ways to move and offer some new ideas, too. 

Who/When/Where:
Join us the third Saturday of each month at 8am pacific/11am eastern.
All classes will be conducted virtually via Zoom. Expect to receive a link via email at least 30 minutes in advance of the scheduled start time.
Most sessions will last 30-40 minutes. Participants invited to stick around after the session to learn more about the instructor's affiliated company or socialize with other participants. 
All abilities are welcome to join us!

 
 
 

Medical Supply Closet

Our supply closet is located at the office in Arlington. We have catheters, diapers, wound care supplies, briefs, catheter insertion kits and various other supplies. If you have need of incontinence supplies or would like to donate supplies, please contact Robin at rlee@spinabifidant.org.  We have plenty of catheters in sizes ranging from 6f to 18f, including coude' tips! We also have diapers, adult briefs, bed pads, sterile water, foley insertion kits, betadine and lots, lots more!  Please contact us if you need supplies or wish to donate supplies!

 
 

When shopping on Amazon, don't forget to shop at smile.amazon.com and select Spina Bifida Association of North Texas as your charity to support! You can click this link to go to our page and select us. It's easy, free to you and it supports SBANT! Thank you!

Amazon Wishlist - Our wishlist will switch to our Camp TLC list through June.  Want to help support Camp TLC?  Visit our list on the link below!

 

Get Connected!

Stay connected to what's going on at SBANT through Facebook!

Like our Facebook page or join one of our closed groups today!

SBANT CALENDAR

April 15 - Scholarship Applications Due

    June 13-18 Camp TLC

September 11 - WalkNRoll for SBANT

November 19-21 Fall Family Camp

December 19 - Holiday Party

Follow us!

Contact Us

Spina Bifida Association of North Texas
801 Avenue H E Ste 101
Arlington, Texas 76011
214-728-9294
rlee@spinabifidant.org

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