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FEBRUARY 2021 NEWSLETTER

Our mission is to build a better and brighter future for all those impacted by Spina Bifida.

 

Welcome New Board Members!

We would like to thank everyone who is volunteering to serve on the SBANT board this year!  We have six new board members this year.  They are as follows:  Jessica Bass, SB parent; Julie Counts, SB parent; Jordan Lee, SB adult; Christina Nason, community member; Victoria Belmont, community member; and Spencer Ryan, community member.  We would also like to thank the following who are now retired from the board for their years of service:  Tim Nese, Brendan Downes, Greg Robertson, Jeffrey Carter, Joanne Hurtekant, Carter Brown and TK Khen. 

Our new board chair is Julie Carter and Chair-Elect is Dr. Kristen Taylor.  We are thankful to both of these ladies for stepping up to lead SBANT now and in the future!  To see our entire board roster, please visit our Board of Directors page on our website.

SBANT Online Store

 Visit the store today!  If you have any questions or requests, please contact Robin at rlee@spinabifidant.org.  Happy shopping!

 

Virtual Hispanic Family Camp

¡Nuestro campamento de primavera para familias hispanas se volverá virtual este año! Camp John Marc está actualizando su sitio web El campamento es más que un lugar y tendrá actividades en línea durante toda la primavera disponibles para todas nuestras familias. Consulte el folleto a continuación.      
Para nuestras familias de habla hispana, les enviaremos un Camp In A Box lleno de los suministros necesarios para completar las actividades del fin de semana del 19 al 21 de marzo. Necesitamos saber cuántas familias están interesadas. Habrá una sesión en línea en vivo con el personal de Camp John Marc. Si es una familia de habla hispana y desea participar, haga clic en el botón Registrarse a continuación. Queremos que tenga un fin de semana familiar divertido cuando normalmente iría al campamento John Marc. Recuerde, ¡el campamento es más que un lugar!     
 

 

SBA Update on Coronavirus Vaccine

 Now that immunizations have moved beyond health care providers to a graduated distribution to the general public, people with Spina Bifida have been expressing a number of questions. This update will attempt to address as many of these questions as we can. For the latest update provide by Dr. Timothy Brei, please click HERE.

 

Scholarship Program

The SBANT Scholarship Fund is administered by SBANT so that persons with Spina Bifida might achieve their full potential through the pursuit of higher education or technical school training. The Scholarship Fund offers assistance to persons born with Spina Bifida for such necessities as tuition, books, room and board and specialized equipment needs. The Scholarship Fund began in honor of Dr. Hurt and continues to be supported by the Dr. and Mrs. Hurt endowment and generous donations from our community.  The 2021 application is available on the link below.  Applications will be due April 15th.  

 

GoBabyGo 

Go Baby Go and Toyota are partnering in Plano Texas to modify power ride on cars for kids with mobility challenges. Cars will be modified from a traditional floor pedal to a switch on the steering wheel for activation, a speed dial and light postural supports.

They are planning a 10 car virtual build for 2/27/21 and are looking for local kids that would be interested in receiving a car.  Kiddos that are the best match for the cars are 2-3 years old, have independent head control and can floor sit independently or with minimal support.  Because sizing of kids varies, they have sometimes been able to accommodate larger 1 year olds and smaller 4-5 year olds.  The application is in an electronic format and the link is below.  COMPLETE ASAP AS THE DEADLINE IS FEBRUARY 17th!

If families are new to Go Baby Go, here is some information on the program! 

Go Baby Go (GBG) is an international grassroots movement focused on real time, real world solutions for mobility and play. The movement began at the University of Delaware with Dr. Cole Galloway. The mission of GBG is to “help empower individuals with the ability to co-create their world through mobility.” Mobility is a human right. Through GBG’s low tech/high impact solutions, we provide children with social mobility experiences that create opportunities for independence and self-expression through a combination of disruptive innovation, formal academic research and community outreach

Summer Camp TLC

 

Virtual Education Day for Adults with SBLifelong Transition: Health Care and Preparation 
This event will be presented by specialists in adult Spina Bifida care at the University of Pittsburgh Adult Spina Bifida Clinic, the Penn State Health Spina Bifida Clinic, members of Living with Spina Bifida in Central Pennsylvania, and the Spina Bifida Association. 

This live, virtual educational event is designed to address topics of importance to adults with Spina Bifida. Presentations have time for Q&A with the speakers and panelists. Topics will include:

Men's sexual health
Women's health
Independent living
Managing challenges with insurance and making the most of your coverage
Mental health in the context of health challenges
Financial planning for your future

We want our SBANT adults to attend this event!  Scholarships for registration fees will be available.  Contact Robin for more information.  

 
 

SBA is excited to announce the 2021 Virtual Teal on the Hill advocacy event will be held March 1-5 with training being the afternoon on the 1st and 2nd and meetings being the 3rd-5th. Be sure to mark your calendars! We’re excited more than ever to continue our advocacy efforts, because they WORK! Registration is open!  Register Today!

The Tom Baroch memorial scholarships will be available to adults with SB http://sbapply.org/prog/scholarships

 
 
 

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2021 Virtual Adapted Fitness Club​
Whether you're looking to connect with friends from across the country or are looking to kick off the new year with a new fitness routine, this program has something for everyone. Join us the third Saturday of each month for a rotating adapted fitness session, from chair yoga to adapted Zumba, this program is sure to offer some of your favorite ways to move and offer some new ideas, too. 

Who/When/Where:
Join us the third Saturday of each month at 8am pacific/11am eastern.
All classes will be conducted virtually via Zoom. Expect to receive a link via email at least 30 minutes in advance of the scheduled start time.
Most sessions will last 30-40 minutes. Participants invited to stick around after the session to learn more about the instructor's affiliated company or socialize with other participants. 
All abilities are welcome to join us!

 
 
 
 
 

Medical Supply Closet

Our supply closet is located at the office in Arlington. We have catheters, diapers, wound care supplies, briefs, catheter insertion kits and various other supplies. If you have need of incontinence supplies or would like to donate supplies, please contact Robin at rlee@spinabifidant.org.  We have plenty of catheters in sizes ranging from 6f to 18f, including coude' tips! Please contact us if you need supplies or wish to donate supplies!

We currently do not have any gloves in stock.  See our Amazon Wishlist link below on how you can help support the supply closet!

 
 

When shopping on Amazon, don't forget to shop at smile.amazon.com and select Spina Bifida Association of North Texas as your charity to support! You can click this link to go to our page and select us. It's easy, free to you and it supports SBANT! Thank you!

Amazon Wishlist - We have set up a wishlist on Amazon of items that we need to support the office, the incontinence supply room, etc.  It will be added to throughout the year as we have events or areas that need support and you can purchase the supplies that we need if you chose to support our programs this way.  

 

 

Get Connected!

Stay connected to what's going on at SBANT through Facebook!

Like our Facebook page or join one of our closed groups today!

SBANT CALENDAR

More Items Will Be Added Pending the Covid Situation

February 1 - Scholarship Applications Available

March 19-21 - Virtual Hispanic Family Camp 

April 3 - RISE Easter Egg Hunt

April 15 - Scholarship Applications Due

June 13-18 Camp TLC

September 11 - WalkNRoll for SBANT

November 19-21 Fall Family Camp

December 19 - Holiday Party

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Contact Us

Spina Bifida Association of North Texas
801 Avenue H E Ste 101
Arlington, Texas 76011
214-728-9294
rlee@spinabifidant.org

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