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JANUARY 2021 NEWSLETTER

Our mission is to build a better and brighter future for all those impacted by Spina Bifida.

 

Happy New Year!

We look forward to serving our Spina Bifida community in 2021.  It may continue to look different, including virtual activities, but we are here to support our families and individuals with Spina Bifida.  Don't hesitate to contact us if you have needs.

SBANT Online Store

 Visit the store today!  We also have items that will be added including water bottles, insulated coffee mugs, lunch boxes, portable chairs and more.  If you have any questions or requests, please contact Robin at rlee@spinabifidant.org.  Happy shopping!

 

Bilingual Hispanic Liason Needed

Help! After serving the SBANT Spanish speaking community for over 28 years, Maria will be retiring.  We thank her for all of her dedication to these families and growing this group over the years.  SBANT needs a new Hispanic Liason board member.  This person will not have to fill all the roles that Maria held, that would be a daunting task!  Instead, we need a bilingual Spanish & English speaking person that would assist in communicating with our Spanish speaking families.  This includes:

  • translation assistance when families need assistance or incontinence supplies
  • assistance with translation of SBANT documents and communications
  • assist with communications for events as needed
  • being a member of the board of directors preferred but not required

Please contact Robin for further information at 214-728-9294 or rlee@spinabifidant.org.  Thank you for supporting our Spanish speaking families!

 

The Centers for Disease Control Issued Vaccination Considerations for Persons with Underlying Medical Conditions

 (https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/underlying-conditions.html) Because health conditions related to Spina Bifida are different from person to person, having Spina Bifida alone is not included in the list of conditions that can put one at increased risk of severe illness from the virus that causes COVID-19.  Please contact your medical provider who is familiar with your particular health needs, and who will recommend whether you should or could obtain the vaccine before other groups.  

 

Scholarship Program

The SBANT Scholarship Fund is administered by SBANT so that persons with Spina Bifida might achieve their full potential through the pursuit of higher education or technical school training. The Scholarship Fund offers assistance to persons born with Spina Bifida for such necessities as tuition, books, room and board and specialized equipment needs. The Scholarship Fund began in honor of Dr. Hurt and continues to be supported by the Dr. and Mrs. Hurt endowment and generous donations from our community.  The 2021 application will be available February 1st on the link below.  Applications will be due April 15th.  

 

Free Webinar on Special Needs Trusts

This free webinar is being offered by the North Central Texas Aging & Disability Resource center.  Online registration is required.  For more information or to register, click on the link below.

Summer Camp TLC

Stay tuned for news and updates regarding camp!

 

Virtual Education Day for Adults with SBLifelong Transition: Health Care and Preparation 
This event will be presented by specialists in adult Spina Bifida care at the University of Pittsburgh Adult Spina Bifida Clinic, the Penn State Health Spina Bifida Clinic, members of Living with Spina Bifida in Central Pennsylvania, and the Spina Bifida Association. 

This live, virtual educational event is designed to address topics of importance to adults with Spina Bifida. Presentations have time for Q&A with the speakers and panelists. Topics will include:

Men's sexual health
Women's health
Independent living
Managing challenges with insurance and making the most of your coverage
Mental health in the context of health challenges
Financial planning for your future

Scholarships for registration fees will be available.  Contact Robin for more information.  

 
 

SBA is excited to announce the 2021 Virtual Teal on the Hill advocacy event will be held March 1-5 with training being the afternoon on the 1st and 2nd and meetings being the 3rd-5th. Be sure to mark your calendars! We’re excited more than ever to continue our advocacy efforts, because they WORK! More information coming soon regarding registration- stay tuned! 

The Tom Baroch memorial scholarships will be available to adults with SB http://sbapply.org/prog/scholarships

 
 
 

2021 Virtual Adapted Fitness Club​
Whether you're looking to connect with friends from across the country or are looking to kick off the new year with a new fitness routine, this program has something for everyone. Join us the third Saturday of each month for a rotating adapted fitness session, from chair yoga to adapted Zumba, this program is sure to offer some of your favorite ways to move and offer some new ideas, too. 

Who/When/Where:
Join us the third Saturday of each month at 8am pacific/11am eastern.
All classes will be conducted virtually via Zoom. Expect to receive a link via email at least 30 minutes in advance of the scheduled start time.
Most sessions will last 30-40 minutes. Participants invited to stick around after the session to learn more about the instructor's affiliated company or socialize with other participants. 
All abilities are welcome to join us!

 
 
 
 

Medical Supply Closet

Our supply closet is located at the office in Arlington. We have catheters, diapers, wound care supplies, briefs, catheter insertion kits and various other supplies. If you have need of incontinence supplies or would like to donate supplies, please contact Robin at rlee@spinabifidant.org.  We have plenty of catheters in sizes ranging from 6f to 18f, including coude' tips! Please contact us if you need supplies!

We have just received a large donation of 14f closed systems, size Adult M and Adult L pullups, medium bed pads and 14f 6" catheters. 

We currently do not have any gloves in stock.  See our Amazon Wishlist link below on how you can help support the supply closet!

 
 

When shopping on Amazon, don't forget to shop at smile.amazon.com and select Spina Bifida Association of North Texas as your charity to support! You can click this link to go to our page and select us. It's easy, free to you and it supports SBANT! Thank you!

Amazon Wishlist - We have set up a wishlist on Amazon of items that we need to support the office, the incontinence supply room, etc.  It will be added to throughout the year as we have events or areas that need support and you can purchase the supplies that we need if you chose to support our programs this way.  

 

 

Get Connected!

Stay connected to what's going on at SBANT through Facebook!

Like our Facebook page or join one of our closed groups today!

SBANT CALENDAR

More Items Will Be Added Pending the Covid Situation

February 1 - Scholarship Applications Available

March 19-21 - Virtual Hispanic Family Camp 

April 3 - RISE Easter Egg Hunt

April 15 - Scholarship Applications Due

June 13-18 Camp TLC

September 11 - WalkNRoll for SBANT

November 19-21 Fall Family Camp

December 19 - Holiday Party

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Contact Us

Spina Bifida Association of North Texas
801 Avenue H E Ste 101
Arlington, Texas 76011
214-728-9294
rlee@spinabifidant.org

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