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MARCH 2021 NEWSLETTER

Our mission is to build a better and brighter future for all those impacted by Spina Bifida.

 

Advocate for the Spina Bifida Community Today!

This week, during Teal on the Hill, the entire Spina Bifida community will have the opportunity to advocate using our easy and accessible advocacy tool. Read Donna's story and join her and the other advocates from across the country as we all advocate for the Spina Bifida community. https://www.spinabifidaassociation.org/teal.../take-action/  You can advocate twice, once for each priority:

  • Tell Congress to Increase Funding for the National Spina Bifida Program
  • Tell Congress to Include the Disability Community in COVID-19 Relief Bills

 

 

SBANT Office is Moving!

We are excited to announce that we are moving to a larger suite within the same Arlington office location.  We will still have the same address and suite number, we will just be moving a few steps down the hall.  This move will allow us to better serve our SBANT community.  If you would like to volunteer to help us move, have a strong teenager who needs volunteer hours or even have a cart or dolly, we would appreciate your help!  Stay tuned for more information and a SignUp Genius link as we wait for property management to finish cleaning and remodeling the suite.

 

Virtual Education Day

for Adults with Spina Bifida

March 13, 2021 11:00-5:30cst
IT'S NOT TOO LATE!  REGISTER TODAY!  This event will be presented by specialists in adult Spina Bifida care at the University of Pittsburgh Adult Spina Bifida Clinic, the Penn State Health Spina Bifida Clinic, members of Living with Spina Bifida in Central Pennsylvania, and the Spina Bifida Association. 

This live, virtual educational event is designed to address topics of importance to adults with Spina Bifida. Presentations have time for Q&A with the speakers and panelists. This Education Day will feature two tracks: one for adults ages 18-39, and another for adults ages 40+.

We want our SBANT adults to attend this event!  Scholarships for registration fees will be available.  Contact Robin for more information. 

 

Virtual Hispanic Family Camp

¡Nuestro campamento de primavera para familias hispanas se volverá virtual este año! Camp John Marc está actualizando su sitio web El campamento es más que un lugar y tendrá actividades en línea durante toda la primavera disponibles para todas nuestras familias. Consulte el folleto a continuación.      
Para nuestras familias de habla hispana, les enviaremos un Camp In A Box lleno de los suministros necesarios para completar las actividades del fin de semana del 19 al 21 de marzo. Necesitamos saber cuántas familias están interesadas. Habrá una sesión en línea en vivo con el personal de Camp John Marc. Si es una familia de habla hispana y desea participar, haga clic en el botón Registrarse a continuación. Queremos que tenga un fin de semana familiar divertido cuando normalmente iría al campamento John Marc. Recuerde, ¡el campamento es más que un lugar!     
 

 

 

SBANT Easter Egg Hunt

 

SBANT Online Store

 Visit the store today!  If you have any questions or requests, please contact Robin at rlee@spinabifidant.org.  Happy shopping!

 

Scholarship Program

The SBANT Scholarship Fund is administered by SBANT so that persons with Spina Bifida might achieve their full potential through the pursuit of higher education or technical school training. The Scholarship Fund offers assistance to persons born with Spina Bifida for such necessities as tuition, books, room and board and specialized equipment needs. The Scholarship Fund began in honor of Dr. Hurt and continues to be supported by the Dr. and Mrs. Hurt endowment and generous donations from our community.  The 2021 application is available on the link below.  Applications will be due April 15th.  

 
 
 

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2021 Virtual Adapted Fitness Club​
Whether you're looking to connect with friends from across the country or are looking to kick off the new year with a new fitness routine, this program has something for everyone. Join us the third Saturday of each month for a rotating adapted fitness session, from chair yoga to adapted Zumba, this program is sure to offer some of your favorite ways to move and offer some new ideas, too. 

Who/When/Where:
Join us the third Saturday of each month at 8am pacific/11am eastern.
All classes will be conducted virtually via Zoom. Expect to receive a link via email at least 30 minutes in advance of the scheduled start time.
Most sessions will last 30-40 minutes. Participants invited to stick around after the session to learn more about the instructor's affiliated company or socialize with other participants. 
All abilities are welcome to join us!

 
 
 
 
 

Medical Supply Closet

Our supply closet is located at the office in Arlington. We have catheters, diapers, wound care supplies, briefs, catheter insertion kits and various other supplies. If you have need of incontinence supplies or would like to donate supplies, please contact Robin at rlee@spinabifidant.org.  We have plenty of catheters in sizes ranging from 6f to 18f, including coude' tips! Please contact us if you need supplies or wish to donate supplies!

We currently do not have any gloves in stock.  See our Amazon Wishlist link below on how you can help support the supply closet!

 
 

When shopping on Amazon, don't forget to shop at smile.amazon.com and select Spina Bifida Association of North Texas as your charity to support! You can click this link to go to our page and select us. It's easy, free to you and it supports SBANT! Thank you!

Amazon Wishlist - We have set up a wishlist on Amazon of items that we need to support the office, the incontinence supply room, etc.  It will be added to throughout the year as we have events or areas that need support and you can purchase the supplies that we need if you chose to support our programs this way.  

 

 

Get Connected!

Stay connected to what's going on at SBANT through Facebook!

Like our Facebook page or join one of our closed groups today!

SBANT CALENDAR

More Items Will Be Added Pending the Covid Situation

March 13- Virtual Adult Education Day

March 19-21 - Virtual Hispanic Family Camp 

April 3 - RISE Easter Egg Hunt

April 15 - Scholarship Applications Due

June 13-18 Camp TLC

September 11 - WalkNRoll for SBANT

November 19-21 Fall Family Camp

December 19 - Holiday Party

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Contact Us

Spina Bifida Association of North Texas
801 Avenue H E Ste 101
Arlington, Texas 76011
214-728-9294
rlee@spinabifidant.org

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